Story Sharing
Everyone should be able to share their stories
“For everyone fighting for people’s rights to be equal citizens”. This book is unique- co-authored by people with learning disabilities, it describes lived experience of universal human rights enshrined in the UN Declaration. I was specially privileged to work with teenager Emily, her family and teachers to look at what citizenship means for her – now and in the future. https://link.springer.com/book/10.1007/978-981-99-5563-3
Professor Mark Solms’ theory of consciousness promises to revolutionise our ideas about the relationship between emotional and rational (cortical) consciousness. He argues that people with profound intellectual disabilities are emotionally conscious.. In our upcoming webinar run with PAMIS (https://pamis.org.uk) we will be debating how we can translate his ideas into practice. You can find a summary of his talk here https://storysharing.org.uk/wp-content/uploads/2022/05/Neuroscience-Narrative-PMLD-summary.pdf
Two speech and language therapists discuss his work in a 5 minute talk here..: Interview with Nicola and Charlotte. The Hidden Spring is available on Kindle for only £4.74:Kindle: The Hidden Spring. And listen to Mark talking about his life, work and music, here…https://www.bbc.co.uk/programmes/m0010nwy
Look out for further events where we will be discussing the impact of these ideas on how services are delivered
Our courses are now available online by clicking here.
Storysharing Masterclass with Gunnar Vege December 2nd 16.00-17.30pm- tickets available now for a rare opportunity to see him demonstrate how memory for events can be created and shared with people who have complex sensory impairments, including those with PMLDs. Gunnar is one of the leading practitioners working with people with congenital deaf blindness.
Click here to buy tickets and email us if you are a parent carer who would like a free place.
On November 25th we have the Surviving through Story conference, sharing the experiences of people with learning disabilities during the pandemic (you will NOT want to miss the gorilla doing a charity run…) https://www.survivingthroughstory.com/post/surviving-through-story-conference
On October 12th with Julie Calveley of NAC we held a webinar to explore how parents think their children with PMLDs experience and express emotions. If you would like to be part of the working group, please email us at info@storysharing.org.uk. A short presentation can be viewed here https://storysharing.org.uk/wp-content/uploads/2021/10/Do-you-know-how-I-feel-presentation.pdf
More events planned for 2022 – so watch this space and sign up for our newsletter to learn more.
Download the September 2021 newsletter for more information about the above, and more.
In this workshop, speech and language therapist Ashleigh Paddon and mum Jitka Jacubkova took us through a practical guide to creating and sharing personal stories with children who use aided communication – books and apps that are widely available. Certificate and powerpoint can be found below for attendees.
This interactive talk by Charlotte Parkhouse, Gareth Smith and Nicola Grove shared creative ways of using gesture and key word sign (eg. Makaton, Signalong) to promote narrative and discussion with young people who have learning disabilities. Our ideas come directly from our students, when we started observing closely what they were actually doing with the vocabulary we had taught them. We saw them holding the floor, innovating, and expressing their ideas directly in ways far beyond what we had thought they were capable of. A recording of the talk will shortly be available. Attendees can access the powerpoint and a certificate of attendance here. The research is described in the chapters we wrote for the book Manual Sign Acquisition by Children with Developmental Disabilities, now available in paperback and with individual chapter purchase. For 20% discount, use code special20 https://novapublishers.com/shop/manual-sign-acquisition-in-children-with-developmental-disabilities/