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Story Sharing

Story Sharing

Everyone should be able to share their stories

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News

Adult Social Care Impact Study 2026 pilot

Storysharing® was one of two projects selected for an Impact Launchpad pilot in care homes in East London, jointly funded by London Social Ventures and Care City. This was an exciting opportunity to try the programme out in the new setting of elder care, including individuals with dementia – as well as the more familiar setting of a learning disability day care service.

I had great support from the LSV/CC team.

“The Impact Launchpad pilot tested Storysharing across three care settings between November 2025 and March 2026. The findings were clear: Storysharing creates real value for residents, staff and the wider atmosphere of care settings. It helped residents express identity and preferences, strengthened relationships between residents and staff, and gave staff richer ways to understand the people they care for.”

One resident said, “we’ve got to hear each other’s stories; it’s been an eye opener”. These residents went on to share their stories outside the sessions with others, creating an enthusiasm for exchanging anecdotes.

For those with dementia, it was evident that small stories from family history had the potential to evoke well-established memories, particularly when associated with catchphrases. Family members spoke of how telling these stories animated their relatives and brought them out of themselves.

We also saw how great people were at supporting those who communicated nonverbally – one young woman at the day centre was particularly good at this, especially using a Big Mac communication aid.

We are delighted to say that RIX is partnering with Care City on funding proposals to expand and develop the use of Storysharing® in residential care homes — watch this space.

Filed Under: Articles, News

Celebrating Teachers’ Storysharing with the Open Thinking Partnership

Over the last school year, led by Grace Campton, Dorothy Goodman School and Nicola Grove have been running Storysharing Practitioner Training for the Open Thinking Partnership, with Rachel Barker’s support.

Rachel has been a Storysharing Tutor for some time, and Grace is completing Tutor Training this year. I’ve learned so much from working with such a diverse and skilled group of professionals.

People have taken up the challenge in very different ways, but have shown such dedication and commitment. Thank you to all of you, and especially to Grace and Rachel.

We will be working on a paper focusing on how the programme supports inclusion. Watch this space!

Filed Under: News

WHAT MATTERS TO ME… 13/3/25 Launch

WHAT MATTERS TO ME… 13/3/25 Launch at House of Commons of the Challenging Behaviour Foundation project for young people with severe and profound and multiple learning disabilities

What Matters to Me directly engaged with 11 young people over three years, working closely with their families and support circles. The aim was to gather the experiences, preferences and views of young people to influence policy and practice as they made the transition from child to adult services.
This process is too often viewed as ‘too difficult’ if the young person has limited or no verbal communication. The project used innovative approaches including art, music and Storysharing®, and provided opportunities for the young people to meet and socialize with their friends.

The project findings will be shared via a multimedia manifesto
consisting of photography and films, guides, case studies and resources.

“It can be done. It just needs society just to take a little bit of time and see how these young people express their needs.”

A speech from one of the parents highlighted how
Storysharing® had opened up family conversations.

“We had a fantastic session around story sharing with Nicola Grove. This session actually helped us as a family to think up new ways of talking with our daughter about past experiences and activities. It’s difficult to know what she does remember but thanks to this session we now have several photo books that we share with her. Each photo book focuses on an individual trip out, occasion or holiday and it gives us the opportunity to chat with our daughter about past experiences.”

More information about the What Matters to Me project,
including the four films launched at the event, can be found at:
https://www.challengingbehaviour.org.uk/what-matters-to-me/

Filed Under: Articles, News

Ethics webinar February 2025 – Follow-Up & Recording

Ethical issues in sharing online images with people with PMLDs: consent, awareness and representation. 

13.00-15.15 Online Webinar Rix Centre Webinar, 20/2/25

How can we enable people with profound and multiple disablities to be part of online communities, without compromising their agency and their safety? Social media is now a primary channel for chat, information sharing and marketing – and its use is advancing and changing with the introduction of AI faster than we can track it. We wanted to bring out the ethical challenges involved in sharing photos and videos, identify good questions to ask, and lay the foundations for some practical guidelines – and we think we succeeded in meeting our aims.

Over 130 people signed up to hear from our keynote speaker, Professor Màire Messenger Davies, and a panel made up of families, professionals, and researchers. Professor Davies provided a fresh perspective from her research on broadcast media, press regulation and on the views of young children on their participation. The panel presentations provided food for thought in sharing values, practice and challenges. Everyone enjoyed and respected the views of one teenager on her feelings about social media, represented through the skilled use of a Talking Mat. This is only the starting point – we will be writing a paper, and sharing some draft thoughts for further collaborative action. We look forward to more stimulating debates in the future.

To view the recording, visit our website:
https://www.rixinclusiveresearch.org/ethics-seminar-20-02-25/

Filed Under: Articles, News

Ethics webinar February 20th 2025

Ethical issues in sharing online images with people with PMLDs: consent, awareness and representation. 

13.00-15.15 Online Webinar Rix Centre Thursday 20th February 2025

https://www.eventbrite.co.uk/e/ethical-issues-in-sharing-online-images-of-people-with-pmld-tickets-1088523696679?aff=oddtdtcreator

In a fast changing online world, we need ethical guidelines for the sharing of images and information, with people who lack capacity for informed consent.

Social media is now a primary channel for chat, information sharing and marketing. People with lived experience of profound disabilities have the right to participate and to be represented online. How can we engage them so that they have some agency in these decisions? 

Join us to share your ideas and good practice. Short presentations will be followed by discussion in breakout rooms, ending with a plan of action.

Keynote talk.  

  • Maíre Messenger Davies, Emerita Professor of Media Studies and Policy at Ulster University.  Key issues in sharing online content:

Panel presentations: 

  •  Ben Simmons, Reader in Inclusive Education and Disability Research, Bath Spa University
  • Catherine de Haas, Parent, doctoral student Southampton University
  • Julie Calveley, Director NAC-wellbeing, learning disability nurse
  • Gosia Kwiatowska, Director and Paul Watts Reader in Media,  Rix Centre
  • Liz Tilley, Professor of Learning Disability Studies, Open University
  • Rachel Barker Dorothy Goodman School

Filed Under: News

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