Ethical issues in sharing online images with people with PMLDs: consent, awareness and representation.
13.00-15.15 Online Webinar Rix Centre Webinar, 20/2/25
How can we enable people with profound and multiple disablities to be part of online communities, without compromising their agency and their safety? Social media is now a primary channel for chat, information sharing and marketing – and its use is advancing and changing with the introduction of AI faster than we can track it. We wanted to bring out the ethical challenges involved in sharing photos and videos, identify good questions to ask, and lay the foundations for some practical guidelines – and we think we succeeded in meeting our aims.
Over 130 people signed up to hear from our keynote speaker, Professor Màire Messenger Davies, and a panel made up of families, professionals, and researchers. Professor Davies provided a fresh perspective from her research on broadcast media, press regulation and on the views of young children on their participation. The panel presentations provided food for thought in sharing values, practice and challenges. Everyone enjoyed and respected the views of one teenager on her feelings about social media, represented through the skilled use of a Talking Mat. This is only the starting point – we will be writing a paper, and sharing some draft thoughts for further collaborative action. We look forward to more stimulating debates in the future.
To view the recording, visit our website:
https://www.rixinclusiveresearch.org/ethics-seminar-20-02-25/